Tuesday, July 24, 2012

The latest

I had an appointment with my ob yesterday to have my regular checkup as scheduled and to have a biophysical profile of the baby done and a limited sonogram. That just means they checked a few things with the baby, like the amniotic fluid, the baby's movements, his heart rate and his breathing. The limited soon is just to measure and track the mass that is there. Then that sono will be read by the specialist so she can compare it with the one done in her office and she will continue to compare them each week. The doctor said that he would call whether good or bad news, because "with something like this we wouldn't just leave you hanging." That is nice that he is thinking of how we are feeling with all of this and will take the time to call even if just to reassure us that nothing has changed. We should hear by the end of today or sometime tomorrow.

We got the written report from the MRI also during the appointment. The ob also seemed a bit overwhelmed with it and he said he has never dealt with a patient with this. I think it is quite rare for Neuroblastoma or other renal tumors to be diagnosed in utero and since he just deals mostly with pregnant women and not the actual care of the baby after he is born then that would make sense.

The report in some ways confirmed what the specialist believes it to be (Neuroblastoma) but also in some ways brought up even more questions because he did write up a few other less likely possibilities.

But besides this mass that they are seeing everything else looks wonderful! So that is good news!

We have an appointment tomorrow with the pediatric surgeon and he will take a look at the MRI and the sonogram and I guess tell us his opinion. Maybe we will know a little bit more then, but mostly likely I am anticipating just being told that we will just need to do other scans/tests on the baby once he is born to say for sure what the treatment will be.

Mostly we are going to just be waiting and watching. Thank you again for all your prayers. Sometimes this seems so overwhelming and then other times it seems like everything is just normal.





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